Moebius Syndrome Foundation Administration

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"See and hear about the shared experiences of children and adults with Moebius Syndrome"
 

The Foundation Mission

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.


Highlights

What is Moebius Syndrome?
What is Moebius Syndrome?

Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.

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Moebius Syndrome Foundation Selects First Executive Director to Lead Organization
Moebius Syndrome Foundation Selects First Executive Director to Lead Organization

The Moebius Syndrome Foundation, the nation's largest organization dedicated to the support of individuals and families with Moebius syndrome, is proud to announce Kim Cunningham as its new executive director. She began her new position on June 8, 2015.

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Riders for Moebius Poker Run
Riders for Moebius Poker Run

Riders For Moebius is a annual Poker Run on Saturday, June 13, 2015 in Colorado Springs, CO dedicated to raising awareness of Moebius Syndrome and raising money to help fund research.

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Events

12th Moebius Syndrome Conference
12th Moebius Syndrome Conference

The 12th Moebius Syndrome Conference will be held at the Long Beach Hilton, Long Beach (Los Angeles County), California, Friday July 15 – Sunday July 17, 2016.

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