Moebius Syndrome Foundation Administration

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"See and hear about the shared experiences of children and adults with Moebius Syndrome"
 

The Foundation Mission

The mission of the Moebius Syndrome Foundation is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.


Highlights

What is Moebius Syndrome?
What is Moebius Syndrome?

Moebius syndrome is a rare neurological disorder that is present at birth. It primarily affects the 6th and 7th cranial nerves, leaving those with the condition unable to move their faces (they can’t smile, frown, suck, grimace or blink their eyes) and unable to move their eyes laterally.

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Now For Sale!
Now For Sale!

New Moebius Syndrome T-shirts, Teddy Bears (with the logo “I’m smiling on the inside”), Wristbands are for sale. T-shirts now come in several colors in infant and children's sizes. All sales proceeds help fund Moebius syndrome research and conferences.

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New Oral Placement Therapy Study For children with Moebius syndrome ages 5 to 18
New Oral Placement Therapy Study For children with Moebius syndrome ages 5 to 18

A research study will take place to find out how Oral Placement Therapy helps improve facial expression, feeding abilities and speech production in children with Moebius syndrome. Recruitment begins July 2013.

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Events

11th Moebius Syndrome Conference
11th Moebius Syndrome Conference

Plan to attend the 11th Moebius Syndrome Conference, Friday through Sunday, July 18-20, 2014 in North Bethesda, Maryland, just outside of Washington, DC. The 2014 conference will take place at the Bethesda North Marriott Hotel & Conference Center.

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